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Start with the Community: Phase 1 research is complete!

Start with the Community: Phase 1 research is complete!

Start with the Community: Phase 1 research is complete!

February 22, 2021

The Coalition has embarked on an ambitious four-phase consumer research project that centers on equity using participatory design methods. The goal is to identify new messaging, communications, as well as meaningful community and/or clinical strategies to improve serious illness care experiences of at-risk populations. Read more about each phase, and our findings from starting with the community.

Hospital staff revived a man's stopped heart - and he sued

Hospital staff revived a man's stopped heart - and he sued

January 13, 2021

The Coalition’s 2018 consumer research found that just 13% of Massachusetts adults report having a conversation with their doctor about the kind of end-of-life care they wanted. Part of the problem may be that the topic of death is just so hard to talk about, for both the patient and the doctor. “One of the things we hear really commonly is that people just don’t have a good understanding of what the road ahead looks like when they’re very sick,” said Anna Gosline, the Coalition’s director. “And so when you don’t have a really good understanding of what your prognosis is and what’s going to happen to you, it’s really difficult to know what to do or not do…”