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Happy Birthday to the Coalition!

May 12, 2022

Six years ago at the John F. Kennedy Library, we launched our Coalition. It was a truly unforgettable day, not just because Anna was 9 months pregnant. We have been reflecting on our collective work through the strategic planning process we started this spring. Though we’ve only just begun, we wanted to share a bit of our thinking so far and see how it resonates with all of you. The graphic below summarizes our ‘starting point’ for this work. We would greatly appreciate any of your reactions, comments, or questions. The link will take you to a short, open-ended survey, where you can share with us anything the graphic provokes. Your thoughts would be an excellent birthday present…

POLST e-Registry and Interoperability Virtual Session

March 29, 2022

Join us on April 8, 2022 at 10am ET for an open session focused on the POLST Registry and IT Integration. The meeting is intended to focus on the technical aspects of the registry and would be best for people who would be working on implementing the technical workflows and integrating the POLST registry and procedures within current systems and EHRs. At the session, we will share the current vision for the POLST registry and key requirements, collect input on possible gaps and additional technological considerations, and elicit ideas for what should be prioritized at an organizational level, across care settings, and at a broader state level to prepare for successful development and implementation of the registry.

‘Tis the season of strategic planning!

March 18, 2022

We’ve been hinting at it for a while now. And we’re excited the time is finally here: we’re doing strategic planning. The Coalition will be six years old this May and now has more than 125 Massachusetts-based member organizations. As ever, we’re all committed to ensuring that everyone gets health care that supports what matters most, especially in the face of serious illness. But a lot has changed. We’ve learned new things, expanded our relationships, asked new questions, and looked for new ways to increase our impact. There will be multiple ways to engage with us in the work, so stay tuned as we go on this journey.

Train-the-Trainer: ELNEC Core Curriculum - May 24 & 25, 2022

March 10, 2022

Calling all nursing faculty to register for our Train-the-Trainer session about the ELNEC Core Curriculum on May 24 and 25, 2022. Learn how to effectively teach primary palliative nursing skills to manage individuals with serious illness using the ELNEC curriculum.

Author Interview: Making Their Days Happen by Dr. Lisa Iezzoni

February 28, 2022

Coalition working group member Dr. Lisa Iezzoni has a new book out called, “Making Their Days Happen.” Today, about 17 million Americans who live in their homes need assistance with daily activities because of disability. Lisa’s book is a deeply thoughtful elevation of voices often missing from our health care and policy discussions – the voices of paid personal assistance services workers and the consumers they support. Here’s our interview with Lisa!

Almost 1 in 2 of us are caring for a loved one

January 19, 2022

Shovel snow for a loved one? Manage finances? Help with meds? That’s care, and any care counts. Almost 1 in 2 of us are caring for a loved one. It’s a 24/7 role – one that impacts us in every aspect of our lives – and the need for support has never been higher.

Hey all. So it was, well, ANOTHER year.

December 21, 2021

Hey all. So it was, well, ANOTHER year. Of surges and quarantines. Of losses and learnings. Very thankful for all of you and sending all of you my warmest, squishiest hopes for a winter break. -- Anna

UMass Memorial Health's Medicine Grand Rounds

December 10, 2021

Thanks to the generosity of Coalition member UMass Memorial Health, you're invited to attend a special medicine grand rounds featuring the documentary film, "Caregiver: A Love Story." This film portrays the joys and challenges of caring for a person with end-stage illness with home hospice, and will be followed by discussion with the filmmaker, Jessica Zitter, MD, MPH, a critical care physician and author.

Train-the-Trainer: ELNEC Core Curriculum

December 8, 2021

Calling all nursing faculty to register for our Train-the-Trainer session about the ELNEC Core Curriculum on January 12 and 13, 2022. Learn how to effectively teach primary palliative nursing skills to manage individuals with serious illness using the ELNEC curriculum.

Unveiling our expanded research report

November 9, 2021

Today we published an expanded research report, with more detailed data on several of the findings presented at the Summit. A huge, enormous thank you to the sponsors, collaborators and community partners who were integral to this project. We are grateful for your time, faith and support.