Racial and Ethnic Differences in Advance Care Planning

Author: Melissa A Clark, Sharina D Person, Anna Gosline, et al.

Publication date: April 16, 2018

This study, led by Melissa Clark and published in Journal of Palliative Medicine, investigated racial and ethnic differences in (1) designation of a healthcare agent (HCA); and (2) communication of goals, values, and preferences for end-of-life care with healthcare providers, a HCA, or other family members and friends.

The survey found that many adults—especially those from racial and ethnic minority groups—have not named a health care agent or talked about their wishes for care if they become seriously ill. Fewer than half had chosen a decision-maker, and only about 15% had discussed their wishes with a health care provider. These gaps mean that many people may be at risk of receiving care that does not reflect what they want.

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