Perceptions of Patient-Clinician Communication Among Adults With and Without Serious Illness

Author: Carine Davila, Sarah Nouri, Stephanie H. Chan, et al.

Publication date: March 17, 2025

A new study published in JAMA Network Open and led by Carine Davila, Palliative Care Physician at Massachusetts General Hospital, in partnership with the Coalition, highlights critical disparities in the experience of patient-clinician communication among adults with serious illness. Compared to those without serious illness, patients with serious illness were significantly more likely to feel afraid to ask questions, experience unfair treatment, and leave medical visits unsure about next steps- troubling findings with the potential for serious impact on the health and well-being of these individuals. These findings underscore the need for health systems to prioritize strategies that support clear, respectful, and trust-building communication for those facing serious health challenges.

Key Points

Question: Do patient-clinician communication experiences differ between adults with and without serious illness?
Findings: In this cross-sectional analysis of 1847 survey participants, compared with adults without serious illness, adults with serious illness reported worse communication experiences, and more frequently being treated unfairly, feeling afraid to speak up or ask questions, or leaving appointments unsure about the next steps.
Meaning: These findings suggest that focused effort is needed to improve patient-clinician communication for people facing serious illness.

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