Ethical Considerations in End-of-Life Care and Research

Description: This publication describes six ethical aspects of end-of-life research that investigators and clinicians should consider in designing and conducting palliative care research. These include: (1) whether a project is research or quality improvement; (2) the study's potential benefits to future patients; (3) the study's potential benefits to subjects; (4) the study's risks to subjects; (5) subjects' decision-making capacity; and (6) the subjects' choices to “voluntarily” participate in research.

AACN Domain(s): Ethics; Clinical Judgement; Evidence-Based Practice;Health Policy

Format: Article

Audience: Baccalaureate Level; Graduate Level

Cost: Free

Tips and Suggestions: This resource was published seventeen years ago. It would be helpful if it were updated by an interdisciplinary team to highlight any nuances that may emerge in the ethical considerations of end-of-life care.

Citation: Casarett, D. (2005). Ethical Considerations in End-of-Life Care and Research. Journal of Palliative Medicine, 8(supplement 1), s-148-s-160. https://doi.org/10.1089/jpm.2005.8.s-148.